Monday, September 29, 2008

Your Lovely Baldy

So I'm gonna be brave here and post some ugly photos of me. At least I'm wearing makeup, which is a rare occurrence anymore.

My hair is almost all gone, but there's still some stragglers hanging on. I should probably shave it again, but that just sounds so messy. I think it'll all come out with the next round anyway.

From straight on, it's not that bad...


But from the side, it's more noticeable. Plus, I just took my hat off, which makes my hair squish down and I look even balder.

Here's me as "The Thinker." I'm sure Susan would find this hilarious-- "Chemo Brain" has slowed my thought process and she's very patient when I try to express myself. Not much of a "thinker" anymore.

I miss my hair! Here's a blast from the past to remember what I looked like WITH hair... I believe I was 23 in this picture? Hard to say...

Aw, look at that girl. She has no idea what's coming...

Ready for Chemo 9

Well, my last post was short and got 4 comments, so I'm postulating that the shorter the post, the more comments. Maybe my long posts exhaust my readers to the point that they can't muster a comment! Just kidding. But thanks to my commenters for commenting, and thanks to my readers for reading, and thanks to my supporters for supporting! And thanks to Auntie Judy, who just bridged the generation gap!

As you might have noticed, I had kind of a rough week this week. My side effects were just a little worse this week, which makes sense because chemotherapy is a cumulative process. That means that as I have more treatments, the effect piles up on itself, getting a little worse each time. I think that's true, but I'm hoping this week goes better than the last. And I hope the next week goes super duper awesome because I'm going to California! Wahooooo!

When I feel sick from the chemo, it really puts me into a bad, dark mood. Usually I'm pretty positive and happy, but when I feel sick it really makes me aware that I am sick. I don't like being a sick person. Sometimes I feel like the people around me think maybe this isn't so serious because I'm handling it pretty well (and my modesty helps... heh!) and I'm feeling pretty good usually. But this is a serious situation, a serious disease. When I really get down to thinking about it, I am truly fighting for my life here. If I were to have avoided going to the doctor, or if for whatever reason decided not to be treated, I would die. And that's just true. And that's also scary.

OK, enough of that scary stuff. I have my ninth chemo infusion this week, which is... two things. Amazing, because I don't feel like I've been doing "this whole thing" for two months already. Crappy, because I still have about three months left to go, and I feel like time will never pass fast enough. Anyway, Chemo 9 is tomorrow, and I'd appreciate some thoughts and prayers that I'll be back to feeling good this week. Then I have a little over a week to prepare for my trip, then Chemo 10, then CALIFORNIA, then MY BIRTHDAY, and then Chemo 11.

I gotta say, usually I'd be freaking out about how old 26 sounds, feels. But this year I feel young! So young! And I can attribute that to the fact that I have breast cancer, an old lady disease. Everyone with cancer that I see is old. Not always old like a grandma, but old like someone who could be a mom. Either way, older than yours truly. I'm gonna ask if there's any young people getting treatment at my place to see if I can go when they're there. Maybe I'll meet a guy. Hehehe, that would be... probably bad. But it would be nice to find some people my age going through treatment. We could be paranoid together about recurrences. I'd say we could hold each other's hair when we're puking, but... we could be bald together and commiserate about side effects. It might be normalizing.

I have an appointment today with Dr. M., my oncologist. I emailed her a zillion questions the other day, and she said that my questions were very good, but didn't lend themselves to email explanations. I'm excited to talk with her again and learn more things-- cancer is freakin' complicated! We might be able to talk about surgery again, which is very scary to me. I just really don't want to have to have a mastectomy. But if I do have to, then it would be nice to know now so I can start mentally accepting it. I'll tell you the answers to my questions once I know, and then you can be cancer-smart too.

It's amazing to think how much I know about breast cancer in comparison to what I knew about three months ago. I knew nothing before, and now I know all sorts of stuff. At Chemo Ocho, I was waiting (in the waiting room... imagine!) and overheard a phone conversation that a secretary was having with a potential new patient. They were talking about surgeons, and it was clear that this woman on the other end of the line was newly diagnosed. I thought back to when that was me, and it just wasn't so long ago. Really recent, actually! Just less than three months. And I imagined how scared and sad and upset and mad she must be. I just remember being there, how it sucked so much, and then I realized how much has happened to me since then, how far I've come. I also thought about how if I hadn't have met with Dr. S., my surgical second opinion, then I would probably be breastless now, never knowing that there would have been a chance I could have a lumpectomy after neo-adjuvant chemotherapy (that means chemo then surgery). I just wanted to grab the phone and tell this mystery woman, "I've been there and I'm still here! You'll get there. And get a second opinion!"

I'm gonna make myself look as pretty as I can get (not so easy without hair and weird acne breakout bumps all over my neck) and then take a picture of my balding self for you. Because I'm brave like that.

OK, now I'm going to "think." I put it in quotation marks because thinking is not what it once was for me. I have a lot of trouble concentrating, especially Wednesday through Friday or so. I need to make sure I can remember all my questions I want to ask. Well, at least for this week.

Oh yeah, before I go-- the Race for the Cure is this Sunday, October 5 (and Marc turns 26, but he'll be in Vegas so forget him! Ha!) and Susan, Kater and I are planning on staying in Denver Saturday night. We're all just going to register individually-- I think it's $30-- and walk together. If anyone wants to make a donation in my name (or in their name... or in anyone's name... or in no one's name... you get my drift), please do! Cuz cancer sucks, and CarrieHatesCancer! I'm a little fuzzy on the details, I know, but I'll get to calling people to make a plan. I'm really looking forward to it!

Saturday, September 27, 2008

OK, Better Now

I'm feeling a little better now and I'm in a better mood. Finally!

Maybe it's because I got popcorn at Target today. You know how I feel about popcorn...!

Wednesday, September 24, 2008

Grrrr

OK, I'm ready to wake up from this nightmare now.

Tuesday, September 23, 2008

Chemo Ocho

One more day, beating cancer, it's Chemo Ocho! That's a rip-off of an RCPM "Turbo Ocho" song!

I had all these things that I wanted to say today, but I'm really having "chemo brain." Can't focus or remember for the life of me! Hmmmm!

Hopefully tomorrow I'll remember and be able to use my brain...

I've walked over 2 miles a day, every day, for well over a week! And it's making me feel good-- errrr... better!

Anyway, some things I can say about today:
  • I forgot to put on my lidocaine number cream on my port site this morning. Oops! I'm acting like a newbie instead of someone who has had 7 previous infusions. It hurt a little, but not badly.
  • My granulocytes (infection-fighting white blood cells) went down this week. :( They were at a whopping 2.9 last week, and they're at 2.1 this week. But that's still good!
  • I asked my nurse a million questions this time. She's so nice-- a real angel! Anyway, tonight I will be taking 6 pills. UGH. One blood thinner, two sleeping pills, two antibiotics for all these bumps that appeared on my face, back and neck, and a Vitamin E for my stupid hot flashes. Good thing I have a big Nalgene (which I just knocked over... darn! Water everywhere!). I hope I don't drink too much and sleep too hard with my Ambien that I pee in my bed!!!! TMI?
  • I wanted to sign up for a free exercise class at a gym here that offers a special cancer-folk workout class with a trainer, but they're worried about my port. So apparently avoid strength training but go for cardio. Hmph.
  • I have two sores in my mouth that won't go away, so now I have instructions on what to do. I'm going to start with baking soda/salt mouthwash, and if that doesn't work, switch to Biotene, some sort of enzymatic mouthwash. And if that doesn't work, I have a prescription for another mouthwash with some number in it. And I bought special toothpaste, which is miracle stuff according to Big Brother.

I talked to another patient today. I usually don't do that much. I usually just show up, sit down, chemo-fy, and check out. But I think she likes to talk to me... I have no idea why, maybe she's just chatty. Anyway, she's in a really shit situation as far as cancer goes. I hope things look up for her. I have a feeling I'm going to meet a lot of people in scary situations. Please, let's all pray that this is a one shot deal for me, that we knock this out of the park and IT NEVER COMES BACK!

I think metastatic cancer is the scariest thing in the world to me right now. Actually, I think it will always be the scariest thing in the world to me.

Saturday, September 20, 2008

I Wonder How That Happened...?

Somehow I neglected to write a post about the day I was diagnosed. So I wrote one, and it's waaaay back on July 16 ("My Date Which Will Live in Infamy"). So there!

I'm having a pretty decent week. The trick really is to get the hell out of bed early (hehehe that means before 10:00 a.m. for me...!) and make sure to move around. It helps so much. Every day this week I've walked at least two miles. I gotta keep it up, and I think it is helping me drop some of that extra 4-5 pounds I've added. Lemme tell ya, it's hard to tell yourself "No, you can't have dessert with every meal," when you can so easily follow it up with "OK, fine, you do have cancer, so what can it hurt?" A little walking, a little less indulgence, and things are starting to look a little better.

I think I need to clean my room. No, I know I need to clean my room. So I'll go work on that and quit avoiding the necessary! I might even go for a hike today... if not, an "urban hike," a.k.a. a walk...

Thursday, September 18, 2008

Hot Hot Hot!

I have a new side effect that I think really sucks. So one side effect from chemo is decreased fertility. Which, in general, is fine, because I'm not really interested in using my fertility now or anytime soon. For a woman, decreased fertility can mean early menopause, which is hopefully temporary. So no periods for a while, which actually isn't so bad. The major concern is that my period won't come back and I won't be able to bear children in the future. Two of the doctors I've talked to (my oncologist and my surgeon) both seemed to think my period will come back. My oncologist, who is some sort of statistic fiend, said I have about an 80-85% chance of my period coming back, which I think is a pretty good chance.

I'm not really thinking about my fertility much. I would be upset to find myself sterile, but I'm not one of those girls who's always dreamed of having kids. I'm not necessarily sure that's what I want, and even if it were and I were unable to get pregnant, I could always adopt. It works pretty well from what I hear...

Anyway, the fertility thing isn't the crappy side effect. It's the hot flashes.

Naturally, along with the menopause (I was supposed to get my period over a week ago I think... didn't happen... sorry to all you people out there who really don't want to hear about my menstrual cycle... just part of the territory these days...) come the side effects of menopause, including hot flashes. When I mentioned them to the nurse on Tuesday, it was as if she was a psychic. She asked if I was having trouble sleeping because of them.

Yes. In fact I am.

The random flashes of feeling REALLY hot throughout the day aren't so bad. They don't last very long, and usually I'm wearing a jacket or something and can just take it off until I cool off. But I've been having trouble sleeping through the night because I wake up super hot and sweaty, similar to trying to sleep when you have a high fever. Before now, sleeping all the way through the night wasn't a problem. I hate waking up in the middle of the night. It really affects how rested I feel the next day.

I opened my window to try to keep it a little cooler for me. That's helped a little. It's funny; at first I didn't make the connection between my trouble sleeping and chemotherapy.

Hot flashes at age 25. That's a rich one.